Cameron Boyce‘s dad Victor is remembering his late son on the two year anniversary of his death on Tuesday (July 6).
The Descendants‘ star’s father shared an emotional video on Instagram and thanked fans for their support since his untimely passing.
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Cameron Boyce‘s family is getting candid about his unexpected passing last year.
In a new interview, his parents, Victor and Libby Boyce, explained that they didn’t know epilepsy could be fatal.
“We had no idea it could be fatal, obviously. And epilepsy is so common. There’s so many people who have epilepsy but there’s so little talk about it. So little information,” Libby said during an appearance on The Doctors.
She continued, “I think it’s so important that we share our story and hope doctors who are listening and people who are living with epilepsy to get information and share information…It’s so important that people living with epilepsy or any chronic issue get armed with information. They need that.”
That’s why the Boyce family started The Cameron Boyce Foundation and teamed up with the Epilepsy Foundation to help end Sudden Unexpected Death in Epilepsy. K(NO)W SUDEP NOW aims to bring awareness and to end sudden unexpected death in epilepsy through education and helping accelerate research.
Hear all that Cameron‘s parents had to say below…
Cameron Boyce‘s parents know he would be proud of their efforts to raise epilepsy awareness since his passing.
In the five months since the 20-year-old actor’s death, Victor and Libby Boyce have started The Cameron Boyce Foundation, teamed up with the Epilepsy Foundation to help end Sudden Unexpected Death in Epilepsy and contributed to many other causes.
“I think he would be beyond proud. I think he would just be blown away because he was always sort of the one in front of the camera. And I know there are a few times, for example, that he would pull me in, in front of the camera for anything, and I couldn’t speak at all. But he’s kind of coming through me, right now, in a way that I think is incredible,” Libby explained to People.
She continued, “We just have an incredible amount of responsibility to move the needle on the epilepsy front and bring it out from the shadows…We’ve been very surprised and pleased at the reach we’ve been able to have in speaking about epilepsy. We really had no idea that we could impact lives with our voices. Cameron did that. We didn’t do that. Nope. And so, we kind of jumped in feet first and we, just speaking about him and his impact on this world and what we’ve learned about epilepsy since he passed, I think has made a difference in many people’s lives in this world.â€
READ MORE: Libby and Victor open up about Cameron‘s medical condition before his passing
Cameron Boyce‘s parents are sharing more information about his medical condition before his untimely passing earlier this year.
Victor and Libby Boyce sat down with NBCLA in hopes to bring awareness to SUDEP – Sudden Unexpected Death in Epilepsy.
“Cameron was diagnosed with epilepsy when he was 17-years-old. He had a total of five seizures in the time between being 17 and when he passed. He had his first seizure when he had some friends sleeping over. It was early in the morning and they witnessed him,” Libby explained.
She went on to say that Cameron quickly recovered after the first seizure but doctors could not figure out the cause. After his second seizure a year later, he was officially diagnosed with epilepsy.
Victor added, “His cause of death was Sudden Unexpected Death in Epilepsy…Two months after he passed, that was the first time I had ever heard of SUDEP.”
The couple hope that The Cameron Boyce Foundation will help further educate people about epilepsy and encourage research on the condition as well as provide support to the family of those affected.
Hear all that Victor and Libby Boyce had to say below…
The Cameron Boyce Foundation has teamed up with the Epilepsy Foundation to launch a new initiative, K(NO)W SUDEP NOW!
The late actor’s friends Karan Brar and Sophie Reynolds, and his family, Victor, Libby and Maya, appear in a video message to talk about the fight to end SUDEP, Sudden Unexpected Death in Epilepsy.
K(NO)W SUDEP NOW aims to bring awareness and to end sudden unexpected death in epilepsy through education and helping accelerate research.
“The Cameron Boyce Foundation & @epilepsyfdn are teaming up in the fight to end SUDEP. Check out @knowsudepnow to learn, share, and donate so we can work together and save lives. 💜,” Karan wrote on social media.
For more information, visit KNOWSUDEPNOW.org!
Cameron Boyce‘s family pose for a picture on the red carpet at the 2019 Heller Awards held at Taglyan Complex on Thursday night (November 7) in Los Angeles.
The late Descendants actor’s parents, Victor and Libby, and sister Maya, represented the Cameron Boyce Foundation, which was honored with the Impact Award.
In memory of Cameron, the organization provides young people with creative outlets to support the causes he was passionate about, including ending gun violence, providing clean water and advocacy for epilepsy awareness.
One of Cameron‘s best friends and co-stars, Booboo Stewart, was also at the event.
The Heller Awards are presented to distinguished individuals for excellence in the talent industry – managers, talent agents, and casting directors
10+ pics inside of Cameron Boyce‘s family at the 2019 Heller Awards…
Victor and Libby Boyce sat down for their first interview with Good Morning America this morning (August 15), just a month after their son, Cameron Boyce‘s unexpected death.
The two chatted with Robin Roberts about the legacy of their son and explained how Cameron‘s epilepsy didn’t present until his mid-teens.
Cameron had his first seizure at 16, “and then until he had his second one, he wasn’t considered as having epilepsy, and that was when he was 17, going on 18,” Libby shared. “He only ever had five seizures, and the fifth one is what — is the one that he died from.”
Victor added that physicians tried to solve what was causing his seizures, too. However, nothing ever showed.
“They tried to induce him to seize with strobe and different methods. Never seized. And he only ever had seizures while he slept,” he says.
Victor also shared his strongest memory of Cameron just before he died: “I was sitting on the couch, watching whatever, and I hear the door open … And he comes strolling in with his cup of juice or whatever he was drinking and he had just shaved because he had a little goatee and beard, and I was just so happy to see him. I gave him a big hug.”
“And it was just cool that, you know, here’s my now 20-year-old son, just drove up in his car from his house and he’s coming to visit me, and like, I’m thinking this is how it’s going to be. It’s going to be cool,” he said. “That’s my favorite memory right now, because it was the last time I saw him just, like, being an adult and doing his thing.”
Watch their full interview below:
